Adults With Down Syndrome Speak Out About Prenatal Testing

Written by Canadian Down Syndrome Society
Monday, 28 July 2014

Click here to watch the film.


What Prenatal Testing Means To Me

Adults With Down Syndrome Speak Out About Prenatal Testing

July 28, 2014. Have you ever wondered what prenatal testing means to people with Down syndrome? A group of nine adults with Down syndrome want to share their overlooked perspective on this topic, in the film What Prenatal Testing Means To Me, available to watch on the Canadian Down Syndrome Society’s website.

The film stars VATTA (Voices At The Table Advocacy), the Canadian Down Syndrome Society’s self-advocate-led steering committee. These remarkable adults, ranging in ages 22 to 43, reflect on their hopes and fears for the future of Down syndrome in Canada and around the world.

Prenatal testing is a complex and controversial subject. VATTA’s view is simple: If people have fair and balanced information about Down syndrome, and take the time to know and learn more about people with Down syndrome, they will be able to make a better choice for themselves and their families. VATTA wants everyone to “See the Ability” and not believe misconceptions or fears about Down syndrome.

The film was originally presented as a session at the 2014 Canadian Down Syndrome Conference in response to a growing number of concerns by parents and expectant parents regarding prenatal testing.

VATTA’s mission is to help all Canadians “See the ability.” VATTA helps self-advocates use their voice and stand up for what they believe in. VATTA has been part of the Canadian Down Syndrome Society since 2005.

About Canadian Down Syndrome Society:

The Canadian Down Syndrome Society (CDSS) is a vital resource linking individuals, parents and professionals through advocacy, education and providing information. ­The Canadian Down Syndrome Society is proud to be the voice of Canadians with Down syndrome and their families. Visit for more information.


Media Contacts:

Corrine Grieve
Resource Coordinator
Phone: (403) 270-8500 ext. 205
Kirk Crowther
Executive Director
Phone: (403) 270-8500

Local VATTA members in your province:
Alberta Brandon Thielen
Manitoba Ruth Joseph
Nova Scotia Mary Frances Brennick, Will Brewer
Ontario Matthew MacNeil, Andreas Prinz, Jessie Huggett
Prince Edward Island Janet Charchuk
Saskatchewan Nicholas Popowich

2015 Calendar: Send us your photos today!

Written by Canadian Down Syndrome Society
Friday, 11 July 2014

Deadline is August 31, 2014.


Submit your photos today!

The Canadian Down Syndrome Society publishes a calendar annually with photo submissions from our members. The calendar is uniquely designed each year with vivid imagery and submitted photographs.

Each year photos are collected during the summer months. Photos can be submitted by email (to ) or through the online form.

The 2015 Calendar will be in-stock in November, just in time for your holiday and Christmas shopping! Preorders will begin on October.

The deadline to submit photos for the 2015 Calendar is Sunday, August 31, 2014.

2015 Canadian Down Syndrome Conference in Edmonton

Written by Canadian Down Syndrome Society
Friday, 27 June 2014

Edmonton Conference Logo

More information coming soon!

Thank you for the great weekend, Fredericton!

Written by Canadian Down Syndrome Society
Friday, 23 May 2014

Fredericton crowd

Wow, we can't believe it's over! We would like to thank the great people of Fredericton, our sponsors, speakers, volunteers, delegates, and friends for helping making the Canadian Down Syndrome Conference another great success!

We had so much fun and made a lot of great new memories!

Some of our favourite parts included:

  • The Maritime Kitchen Party welcome reception by the Fredericton and Area Down Syndrome Society. We'll remember the awesome talent show for years to come!
  • The great presentation from Premier David Alward, who got us excited for the weekend and New Brunswick.
  • Will Brewer's Pre-Keynote speech where he shared his life story and told us to be proud of who we are. Video of this speech will be posted soon!
  • Danny Soucy's heartwarming and powerful Keynote speech that inspired all of us to be the best we can be for our children, families, and communities.
  • The Grease Sing-Along for the VATTA Night where everyone showed off their awesome Grease-inspired fashion and dance moves!
  • The Frozen Family Night where everyone enjoyed the great movie together in their PJs!
  • VATTA's session titled "What Prenatal Testing Means To Me" which will be posted on their blog in the coming weeks.
  • Activist and author Donna Thomson's powerful and informative Endnote session
  • The Common People rocking out at the banquet all night with some of the audience members on stage
  • The big surprise flash mob for Kevin Whyte, the retiring Board Chair for the Canadian Down Syndrome Society

What was your favourite moment? Post it on our Facebook wall or Tweet it to us! Email your pics to and we'll post them. Also check out our Facebook page - we will be posting more photos of the event soon!

Welcome to the Canadian Down Syndrome Conference!

Written by Canadian Down Syndrome Society
Friday, 16 May 2014

Hey Canada! The Canadian Down Syndrome Conference begins TONIGHT! If you can't attend, follow us on Facebook and Twitter and check out the hashtag #CDSSConf. We'll be live-tweeting and posting from the event. We'd also like to thank Fredericton and Area Down Syndrome Society for their hospitality. We LOVE Fredericton!

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